Evaluation: Methods to Stand Up for Children With Disabilities Regardless of Federal Adjustments

By Jennifer McLelland

As a mother of a child with a incapacity, an important lesson I wish to train my son is that he belongs. My son James is 13. He has medically advanced well being circumstances and a incapacity that impacts his respiration. His incapacity isn’t one thing he can conceal from the world. (Even when he might, he shouldn’t must.)

My son is ready to stay at house with our household, attend college and work together with the world as a result of we stay in a nation the place disabled folks have civil rights. Once I hear President Trump speak about eliminating range, equality, inclusion and accessibility, he’s not simply attacking civil rights for disabled folks — he’s sending a message to youngsters like my son that they don’t belong.

It’s a scary time to be a father or mother of a kid with a incapacity. My son has been profitable in class as a result of he’s been in a position to attend class together with his friends in a system that values range, fairness, inclusion and accessibility. If the Division of Training is dissolved, who will defend the rights of disabled college students? If Part 504 of the Rehabilitation Act — a 50-year-old civil rights legislation that protects the rights of individuals with disabilities — is eradicated (16 states are suing to overturn the legislation), will disabled college students have any rights left to guard?

The assaults on range, fairness, inclusion and accessibility are simple to know — they’re simply bullying. Telling youngsters that they aren’t welcome as a result of they’re completely different is simply plain imply.

To assist counteract this, these are the issues I’ve been instructing my son, which I additionally want I might train our flesh pressers:

Range is an efficient factor.

California is a various state. Our range makes us stronger and higher. Incapacity is a part of range as a result of it’s a part of the human situation. Incapacity is an identification that layers on high of race, gender, sexuality and socio-economic standing. It’s necessary for teenagers to study in various school rooms to allow them to see and listen to different folks’s views. When my son’s fourth grade class learn Surprise (a chapter e book a couple of baby with facial variations), the children in his class skilled the e book in a different way as a result of they already knew a baby with facial variations. The children have been in a position to speak concerning the e book on a distinct degree as a result of for them, interacting with a baby with facial distinction was one thing they’d already performed for his or her complete lives.

Fairness is an efficient factor.

One other phrase for fairness is equity. I’m instructing my son that the world is meant to be truthful and that when it isn’t truthful we are able to do one thing about it. When my son was very younger, we lived in Caruthers, a tiny unincorporated neighborhood in Fresno County. It was arduous to entry well being care and early intervention providers as a result of we lived in a rural, impoverished area. To the extent we have been in a position to get providers in any respect, it was as a result of California made a dedication to ship providers in rural and underserved areas. Fairness isn’t saying that each baby can have equal academic outcomes. Fairness is saying that each baby ought to have the identical alternative to attain, in order that our youngsters can thrive even when life isn’t truthful.

Inclusion is an efficient factor.

Disabled youngsters have a proper to attend college with their friends. My son loves college — he’s very happy with being an A pupil. Inclusion isn’t simply good for teenagers with disabilities although, it advantages all people. My son has gone to high school with the identical group of neighborhood youngsters since kindergarten. The children he’s grown up with are utterly unfazed by tube feedings and respiration therapies. The opposite youngsters in his courses will develop as much as be kinder, extra compassionate adults as a result of they’ve had the chance to construct friendships with their disabled friends.

Lodging are a superb factor.

Lodging are one of many ways in which we see range, fairness and inclusion in motion. It’s not sufficient to simply speak about making the world a welcoming place for teenagers with disabilities. My son attends college with a nurse who manages his respiration so he can deal with studying and his lecturers can deal with instructing. It’s one of many lodging in his Individualized Training Plan. Meaning it’s not only a good factor the varsity district offers for him; it’s one thing they’re required to supply to adjust to the legislation. His classmates are used to having the nurse round — the nurse dispenses Band-Aids to different youngsters as typically as he handles a medical emergency for my son. His classmates are studying that some youngsters want somewhat bit of additional assist to get to the identical place.

As Californians, how can we rise up for our values and defend disabled youngsters from an administration that’s sending them messages that they don’t belong? Step one is to push again on the language of exclusion in a means that our youngsters can hear. Our children want to listen to how we worth range, and that they’re welcome in school rooms precisely the way in which they’re. Our children want to listen to that we’re dedicated to constructing an equitable and simply world. Our children want to listen to that inclusion is necessary in order that they know they’re welcome. Our children with disabilities must know that California will worth and defend them.

Jennifer McLelland is the California Well being Report’s incapacity rights columnist. She additionally serves because the coverage director for home- and community-based providers at Little Lobbyists, a family-led group that advocates for and with kids with advanced medical wants and disabilities.

This text first appeared on California Well being Report and is republished right here underneath a Artistic Commons license. CHR LOGO SOCIAL%403x 100 PARSELY = { autotrack: false, onload: perform() { PARSELY.beacon.trackPageView({ url: “https://www.calhealthreport.org/2025/03/19/analysis-how-to-stand-up-for-kids-with-disabilities-despite-federal-changes/”, urlref: window.location.href }); } }

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